SIP and Roadmap
The Societal Impact of Pain - A Road Map for Action
The Road Map For Action is an initiative of the European Pain Federation EFIC® Board to make pain more visible at the level of policymakers at an international and national level. At the international level policymakers and members of European Parliament are requested to support the Road Map for Action. Several of them will be present at the second Invitational symposium on the Societal Impact of Pain (SIP) which will be held on 3 and 4 May 2011 in the European Parliament. During this meeting the Road Map for Action will be launched. Several important Members of European Parliament support SIP and the Road Map for Action.
At the national level, most of the European IASP chapters and members of European Pain Federation EFIC® endorse this Road Map for Action. All these chapters are requested to launch this Road Map for Action on their national level. All boards of national chapters should start national programs to realize the specific aims and targets described in the Road Map for Action together with policy and decision makers and all societies involved in the diagnosis and treatment of pain.Please click here to read the Road Map. Please click here to view the list of Endorsers. Please note that these documents are regularly updated with new endorsers, therefore we recommend to use the link to the European Pain Federation EFIC® website instead of copying the document itself.
If your association is interested to endorse this document, please contact us via the website contact form or send an email to firstname.lastname@example.org.
The SIP campaign is the primary advocacy campaign of the European Pain Federation. It has allowed us to express a very robust and coherent political message to policy makers in a very crowded market of health campaigns. We have found a very sympathetic audience in political circles, and are beginning to see the fruits of a long campaign. By facing up to the challenges, and through years of hard work, we have achieved some successes:-
In 2014, we got health ministers to make a commitment to establish a network on palliative care and pain.
In 2016, one MEP pushed for European Union (EU) funding to be used for the generation of EU-wide data on chronic pain as a cause of involuntary retirement. Whilst we were unsuccessful, we learnt a lot about the process.
We have become influential and have an audience with the European Commission.
Through our work, meeting different European Commission officials, gradually working our way up the chain-of-command, we have been able to have a regular dialogue with some of the most senior European Commission officials.
Our communication with the Commission has led to a formal role, where the European Pain Federation and our SIP partners are part of an expert network which has a regular dialogue with Commission officials to present policy guidance.
We hope to use the strength of our arguments, access to data, and our position representing a large number of experts to influence future EU policies through direct interaction with the Commission.
We hope that our increased work with the representatives of national governments in Brussels leads to a strong commitment from national governments on pain. To further promote this, in September we will provide training for European Pain Federation Councilors to learn from our experience and develop their own advocacy skills. Hopefully we will see a similar kind of success in national capitals, where most decision making is done and most money is spent.
We are committed to working together with other organisations in the field, especially Patient Organisations
The 7th annual Societal Impact of Pain (SIP) symposium
The 7th SIP symposium was held in Valetta, Malta 6-9th June 2017 was attended by more than 300 participants, including healthcare professionals, pain advocacy groups, researchers and specialists in the field of pain as well as insurers, budget holders and European politicians.
It produced clear policy recommendations having been formulated to change pain care in the European Union for the better and alleviate the effect of pain on society. Martin Seychell, Deputy Director General in the Health and Food Safety's Directorate, announced in a speech that the European Commission is following SIP’s lead and has launched the EU Health Policy Platform to build a bridge between health systems and policy makers. Among other health policy areas, the societal impact of pain is included as well and will have a dedicated expert group.
Further details of the meeting can be found here: https://www.sip-platform.eu/
EU Road Map Monitor 2011
Actions for Chronic Pain Treatment Policy needed in Europe - Results from first European Road Map Monitor 2011 revealed
During the 7thCongress of the European Pain Federation (EFIC®) in Hamburg (21-24 September), first insights from the European Road Map Monitor 2011 were presented. The analysis showed initial findings on the strategic international and national implementation of a European "Road Map for Action" for improved pain care in Europe. Preliminary results were given on questions referring to the recognition of pain as a specific health condition, the existence of local stakeholder platforms for best-practice share, and on the status of the implementation of educational programs on pain care as a mandatory teaching subject. The European Road Map Monitor 2011 provides politicians and health care decision makers with a benchmark on national policy in pain care throughout Europe.
In order to monitor the implementation of the SIP Road Map for Action nationally on a yearly basis, the Road Map Monitor questionnaire has been developed. In addition to the seven policy dimensions from the Road Map for Action which are being evaluated, other questions regarding the major achievements and major problems a country is encountering with regard to their local pain policy, were asked. The analysis was conducted from data from 27 countries.
First key results can be summarised as follows:
- In most European countries a local platform advocating pain patients' needs and pain policy is in place, howevercooperation in policy-making with patient advocacy groupsstill needs to be developed
- There is a general lack ofrecognition by national authorities of the right of every citizen to have access to adequate pain care (demonstrated by a regulation or policy)
- Patient access to pain care (diagnosis, treatment, medication) is not sufficiently ensured
- Pain medicine and pain care have only been introduced as mandatory teaching subjects in two countries; pain experts are urgently required
- An educational programme on pain pathophysiology for the general public (?pain is real?) needs to be launched in virtually all countries
- Few activities have been implemented by national authorities to strengthen pain research addressing the societal impact of pain and the burden of chronic pain on healthcare, social- , and employment sectors. This will delay progress in pain care in the long-term.
- Chronic pain treatment policy ensuring adequate waiting times and financing (early diagnosis and secondary prevention) has rarely been implemented
- For the future a consensus finding processneeds to be initiated at local level integrating all stakeholders represented in the SIP platform at EU level (IASP chapter, professional organisations, patient advocacy groups)
These preliminary results give a first impression of what is expected from the completed Road Map Monitor once finalised and published in the near future. The aim is to constantly monitor the progress of the implementation of the Road Map for Action throughout Europe and communicate the findings of the European Road Map Monitor 2011 to National and EU governments to improve policy-making regarding the societal impact of pain in Europe.
The Proceedings book, pictures, a video impression and an overview on local initiatives/press conferences and radio interviews on SIP 2011/ROADMAP can be viewed/ordered via the SIP website.